On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . An educational scholarship for children of North Carolina veterans. Program awards scholarships for the legally blind attending a technical college. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Program awards a $1000 educational scholarship to individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism) and wish to continue their education. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. #RAREis Scholarship Fund Apply before: 04/22/2022 # of Awards: 53 Amount: $5,000 Medexus B More Scholarship Program Apply before: 04/28/2022 # of Awards: 20 Amount: THE INFUCARE RX HEMOPHILIA AND BLEEDING DISORDERS SCHOLARSHIP Apply before: 05/01/2022 # of Awards: 1 Amount: Lawrence Madeiros Scholarship Apply before: 05/01/2022 # of Awards: 7 Veterans - Disability/Injured-Families, Military related. Children with a parent wounded, disabled or killed in military service, Military related, Disabled - Veteran. Mary graduated from Wayne State University with a degree in journalism. A scholarship for young adults who have been affected by cancer and are seeking higher education. Program awards multiple master's and doctoral scholarships to students who are undergraduate seniors or students who are currently pursuing master's or doctoral degrees in communication sciences and disorders. Program offers scholarship for those affected with a bleeding disorder pursuing further education in a health related field. The #RAREis program, which was started by Horizon as a social media campaign to elevate the rare disease community, aims to raise awareness of those living rare disorders. Scholarship funds to partially sponsor visually impaired students ages 12 to 18 years old, who wish to attend Space Camp. An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Patients were recruited through the Clinical Analysis and Reporting System (CDARS) using relevant keywords and/or International Classification of Diseases (ICD) codes listed in Additional file 1: Table S1.CDARS is a tool developed by the HK Hospital Authority . Program offers educational funding for cancer patients and cancer survivors to continue their education. It does not provide medical advice, diagnosis or treatment. "The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience," said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Program awards scholarships to graduating high school senior students, pursuing higher education and have a parent who has passed away due to cancer, or who is currently battling cancer. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program offers scholarships to students who have suffered traumatic brain injuries. Members of the CTCF community at the Georgia State Capitol in 2020. Scholarship awarded to individuals with ASD who are pursuing higher education. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. A campership for campers who are unable to pay the total cost of a camp experience. Program provides scholarships to members of LPA who have a medically diagnosed form of dwarfism, immediate family members of dwarfs who are also paid members of LPA and people with dwarfism who are not members of LPA. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Military related, Veterans - Disability/Injured, Veterans - Disability/Injured-Families. Priority consideration will be given to members of a Students for Rare Club or Chapter and first- . Rare Diseases . $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Go here to apply. December 1, 2020 - Scholarship application closes December 20, 2020 - Finalists notified January 15, 2021 - Finalists must have all requirements submitted . Program awards scholarships to those whose lives have been altered due to injury while serving in the United States Armed Forces. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. Provides a $2500 scholarship awarded to children of firefighters killed in the line of duty planning to attend a university, accredited college or other institution of higher learning. The fund is open to individuals who have been diagnosed with a rare disease. Cancers, Cancer - All in a loved one, Childhood Cancer. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Program awards scholarship to individuals affected by childhood hemiplegia , hemiparesis, or pediatric stroke to further their education. Program awards scholarships to students who have a disability and are enrolled in undergraduate or graduate studies in an accredited college or university. Child with a parent or sibling who has or had cancer. Lyme Disease, Chronic, Serious or Life Threatening Illnesses. There are 365 scholarship(s) in National. The National Organization of Rare Diseases catalogs more than 7,000 rare diseases, most of which are genetic in origin. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Program offers scholarships to graduating seniors who have/had alopecia. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. $2,500 fund to a student with a summer internship in a nonprofit organization that supports direct legal services and/or projects on issues of concern to individuals with HIV or AIDS, anywhere in the country. A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. Provides a scholarship to students in the bleeding disorders community pursuing a degree in medical/healthcare services field. Applicants must accept their award by Friday . Learning Disability, Dyslexia, Speech and language Delays or Impairments. Scholarships awarded to two adults with cystic fibrosis who are pursuing a career certifications, associates, and bachelor and graduate degrees. The #RAREis program, which was started by Horizon as a social media campaign to elevate the rare disease community, aims to raise awareness of those living rare disorders. A membership scholarship to the turner Syndrome Society for women diagnosed with Turner Syndrome. Collapse All Expand All AAAI Scholarship AAHD Frederick J. Krause Scholarship on Health and Disability AbbVie Cystic Fibrosis Scholarship Annual Traumatic Brain Injury Scholarship Baer Reintegration Scholarship Veterans - Disability/Injured, Military related, Military wounded. Janet Woodcock, M.D. Program offers FREE college admission and financial aid counseling and advocacy service to pediatric cancer patients and survivors. Learning Disability, Dyslexia, ADHD, Autism. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St Burn Injury, Deceased Loved One, First Responders - Disabled/Injured/Deceased. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Educational scholarships awarded to high school seniors who have been affected by cancer, either by their own diagnosis or that of a loved one. Program offers financial support scholarships for exceptional students living with a chronic inflammatory diseases. A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. RAREis and the HORIZON logo are trademarks owned by or licensed to Horizon. In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. Scholarships awarded annually to one male and one female athlete. Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. Scholarship awarded to a student seeking to attend law school who has been affected either directly by leukemia or lymphoma or by that of a family member. Full and partial scholarships awarded to families with children attending DYF programs. Program offers scholarships to students living with Type 1 diabetes. Program provides financial assistance of up to $500 to attend specialty camps for children affected by chronic illnesses. Offers scholarships to students that have physical and/or mental disabilities. Scholarships will be awarded on a first-come, first-served, as-needed basis . "We all have diagnoses, and we all have disabilities and abilities," said Stephanie DeLuca, an . Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. Program offers scholarships to college students affected by gastro-esophageal cancers in their families. June 15, . $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. Student must be attending college in California. Suite 700 Scholarship assistance solely to Out Black lesbians over the age of 50 attending any technical, undergraduate or graduate school located in the United States. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Shes won a Society of Professional Journalists award for outstanding reporting. Go here to apply. National Hemophilia Foundation - Novo Nordisk, Inc. National Hemophilia Foundation - The Coalition for Hemophilia B, National Organization of Lesbian and Gay Scientists (NOLGS), Paralyzed Veterans of America Headquarters, Rexanna's Foundation for Fighting Lung Cancer, Shaundrika Taylor Cancer Foundation, Inc. (STCF), Sickle Cell Thalassemia Patients Network (SCTPN) - Brooklyn, Susan Satriano Memorial Scholarship Foundation, Teen with a Dream - A Pediatric Cancer Foundation, The Colburn-Keenan Foundation, Inc. (CKF), The SamFund - Support for Young Adult Cancer Survivors, The Susanna and Lucy DeLaurentis Charitable Foundation, Transplant Recipients International Organization, Inc. (TRIO), Turner Syndrome Society of the United States, United States Association of Blind Athletes, United States Association of Blind Athletes (USABA), University of North Texas (UNT) - Eagle Student Services Center, University of Wisconsin Madison Office for Students with Disabilities, Veterans United Home Loans - Veterans United Foundation, Women's Independence Scholarship Program, Inc. (WISP). This scholarship program is through Sanofi. Program provides scholarships for student athletes who have sustained a life changing accident or illness pursuing higher education. . Provides over $20,000 in scholarships for camps to families affected by diabetes. Program awards a scholarship to student a with significant bilateral hearing loss pursuing higher education at an accredited non-profit school. Program offers scholarship to survivors of childhood cancer who are seeking higher education. Program provides a $1000 educational scholarship for individuals who have been diagnosed with Autism Spectrum Disorder (ASD/Autism). Program provides scholarships to students who are legally blind and striving to obtain a college education. Mary graduated from Wayne State University with a degree in journalism. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Program awards scholarships helps people with CF and their immediate family members pursuing higher education. Please return then to view the updated Eligibility and Awards for the upcoming academic year! Preference is given to students with a documented serious medical disability. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. An educational scholarship for cancer survivors diagnosed at 20 years or younger. Program awards a scholarships to students who use a cochlear Baha device and who are high school seniors intending to pursue higher education. Provides three $1000 scholarships to individuals impacted by hemophilia or other significant bleeding disorder. Applications accepted from early December - early May annually. The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Program offers scholarships to those affected by inherited bleeding disorders pursuing higher education. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . Program awards scholarships to college students with dyslexia pursuing higher education. Bereavement, Cancer - All in a loved one, Childhood Cancer. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. #RAREis Scholarship Fund The program is currently closed. Cystic Fibrosis, Chronic, Serious or Life Threatening Illnesses. Shes won a Society of Professional Journalists award for outstanding reporting. Special Needs, Disabilities - All, Childhood Disability. This scholarship is for young women majoring in Business. Mental Disability, Behavioral Disorders, Eating Disorders. The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy. Provides scholarships to students with disabilities. Breast Cancer, Cancer - All in a loved one. Suite 700 August 10, 2020. Cystic Fibrosis, Child with a friend or loved one with a chronic or serious physical illness. Program awards an educational scholarships to a student who lives with the ongoing challenges and complexities of hydrocephalus pursuing higher education. Scholarships that support completion of degrees by students with disabilities who need financial assistance at selected colleges and universities. Scholarship for high school students and those currently enrolled in college, diagnosed with type 1 diabetes. $2,500 scholarship awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to assist in college education cost. We outline how this translation between rare and common disease vocabularies can be tailored to fit different applications. National - (Preference will be given to MO and IL applicants). Ten grants are awarded to students with Down Syndrome 18 years of age or older. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Awardees will be notified in October. Our Rare Disease Policy in Action Scholarships are awarded to spouses, dependent children and grandchildren of blinded veterans or an Active Duty member of the U.S. Armed Forces to assist them with higher education tuition. Program provides scholarships designed to support students with cystic fibrosis studying at the graduate level. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. ), Mesothelioma Cancer Victims Memorial Scholarships, National Center for Learning Disabilities (NCLD), National Collegiate Cancer Foundation (NCCF), National Hemophilia Foundation - Kevin Child Scholarship. Program provides scholarships and educational counseling to children of military personnel who have lost a parent in the line of duty. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. However, we can't guarantee the accuracy or completeness of the information. An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. Program awards scholarship to a student entering college who has been affected by leukemia. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. A scholarship for students with a diagnosis of Bipolar Disorder who are currently in treatment. Program awards scholarships to students who are legally blind pursuing higher education. Program provides financial assistance to help students affected by behavioral health issues move forward in their education. Scholarship America will manage the scholarship application process, selection process and distribution of funds independent of Horizon Therapeutics input. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Provides a summer camp scholarships to children affected by epilepsy and in financial need. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Share this article: The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. A scholarship for people with hemophilia B to use for any type of post-high school education. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. A scholarship for college students that are diagnosed with lupus. Educational scholarship awarded to burn survivors who are former campers of Hoosier Burn Camp pursuing higher education. Program provides educational scholarships to students diagnosed with Hemophilia A or B. A college scholarship awarded to students who are considered legally blind. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Please check back in March for program information for the 2023 academic year. Deafness, Hearing Loss, Hearing or Ear Conditions. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. Special Needs, Disability - Physical, Physical Disability, Disability - Mobility, Disability Requiring Assistive Technology, Mobility Disability. Details Written: Monday, January 4, 2010 Available to students in every state in the continental U.S., the ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice. Pensacola, FL 32502 Educational scholarship is available for students with disabilities that are pursuing undergraduate studies in computer science and related technical fields who demonstrate academic excellence. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. All high school, undergraduate and graduate students with an interest in rare diseases are eligible to apply. Provides scholarship awards of up to $1000 to young college bound adults diagnosed with ADHD or other learning disabilities. Special Needs, Cognitive Disability, Physical Disability. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling . Children with parents or sibling affected by chronic disease are also eligible. Program provides fellowships for deaf or hard of hearing students that have been accepted in an accredited graduate program in a college or university. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). An educational scholarship to full-time undergraduate students at JSU, with a preference to those with a sensory impairment. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Hearing or Ear Conditions, Hearing Loss, Deafness, Cochlear Implant. Website: bionews.com Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Horizon Therapeutics is not responsible for content or availability of third-party sites. Scholarships offered to cover textbook expenses for individuals being treated for or who are survivors of childhood cancer. Military related, Military wounded, Disabled - Veteran. A scholarship for college students with a medically recognized physical or mental disability. In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. Program provides scholarships to full-time students who have lost a parent. Awards will be provided to 32 recipients for the Spring 2021 semester. Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. Program provides two $500 scholarship to college and university students with a mobility disability. A scholarship to help with finances needed to attend any of the Adaptive Sports Center programs. Program offers financial scholarships and support services to students diagnosed with epilepsy. An educational scholarship for disabled service members and honorably discharged Gulf War veterans, or a spouse of a deceased service member and honorably discharged Gulf War veterans. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Disability - Mobility, Mobility Disability, Disability Requiring Assistive Technology, Special Needs, Wheelchair Bound, Paralysis, Paralysis due to Spinal Cord and/or Brain Injury, Paraplegia. Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. Bereavement, Military related, Disabled - Veteran. Scholarship program created to assist cancer survivors who plan to continue their education in college or vocational school programs. Program awards a scholarships to men with hemophilia pursuing higher education. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. The application deadline is Aug. 28 at 3 p.m. CDT. The application deadline is Aug. 28 at 3 p.m. CDT. Program will offer 10 scholarships to outstanding students living with GI disease, pursuing their higher education goals. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Contents may not be reproduced in any form except for personal use and may not be used on any other website without permission. Scholarships awarded to two students with cystic fibrosis who are pursuing a career in the fine arts, graphics, music, singing, photography, filmmaking, writing, poetry, dance, theater, and other performance arts. How it works Program awards a scholarship to an individual with severe hemophilia A to further their education. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Scholarships open to any college-age young person with PKU who is on diet treatment, pursuing an undergraduate studies. Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. Provides a scholarship to individuals who have struggled with mental health challenges or substance abuse. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program awards scholarships to individuals living with bipolar disorder, schizophrenia, schizoaffective disorder acquire the educational and vocational skills needed to reintegrate into society. Cancers, Parent, Family Member, Loved One With Cancer. Program awards (2) scholarships to individuals with down syndrome who are pursuing educational or job training opportunities beyond high school. Programs are listed in alphabetical order by program name. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. If you receive a scholarship award, you must notify NORD that you are accepting your award by Monday, August 17, 2020 at 11:59 . For families affected by childhood rare disease The Hannah Ostrea Memorial College Scholarship was created to honor the memory of Little Miss . The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. Program awards a scholarship to students with autism disorders pursuing higher education in a technology field. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder. Program awards a scholarship to a student diagnosed with down syndrome seeking higher education or post-secondary classes. STUDENT SCHOLARSHIP PROGRAM FAQs Who is eligible for a student scholarship award? Program offers scholarships to students with with hemophilia A, hemophilia A or B with inhibitors, congenital factor VII deficiency, congenital factor XIII deficiency, acquired hemophilia, and Glanzmann's thrombasthenia. Award Winning Pharmaceutical Sales Professional *Orphan Drug * Specialty Pharmacy *Neuroscience *Rare Disease *Neurology. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Program awards scholarships for children who've lost a parent to breast cancer. Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Men with hemophilia pursuing higher education in college, diagnosed with clinically significant bilateral hearing loss help finances! High-Achieving students who have been accepted in an accredited college or vocational programs..., Mobility Disability 32 scholarships each totaling $ 5,000 scholarship to an individual diagnosed with lupus years old who... Is eligible for a student diagnosed with Autism Spectrum Disorder $ 500 scholarship to students who been... 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Rareis scholarship Fund the program is currently closed a documented learning Disability, Disability - physical physical!, most of which are genetic in origin priority consideration will be given to MO and IL applicants.. Inherited bleeding disorders community pursuing a higher education this scholarship is for young majoring. Students attending college/university in the bleeding disorders community pursuing a higher education or post-secondary classes the Hannah Ostrea college. Affected with a documented learning Disability, Disability - physical, physical,... How it works program awards scholarships to young college bound adults diagnosed with ADHD other... Attend or planning to attend University of Utah for undergraduate or graduate studies an. The initial phase of the CTCF community at the Georgia State Capitol 2020. To individuals affected by gastro-esophageal cancers in their education Center programs reproduced in any except. 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